Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others.
Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management.
Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Table of Contents
Author Appointments
Acknowledgements
Preface
Opening Quote
1. Overview and Introduction
Richard Stevenson and Laurie Glader
2. Functional Assessment and Goals of Management
Jilda N Vargus-Adams and Andrea L Paulson
3. Hypertonia
Darcy Fehlings, Anne Kawamura, Cecilia Lee and
Amber Makino
4. Musculoskeletal/Orthopedic Management
Mark J Romness and Victor Anciano
5. Seating, Mobility, and Equipment Needs
Christopher D Lunsford and Jonathan Greenwood
6. Osteoporosis and Fractures
Steven J Bachrach and Heidi H Kecskemethy
7. Feeding and Nutrition
Valentina Intagliata, Eva Delaney and Mary C Bickley
8. Gastrointestinal Issues
Beate Beinvogl and Munir Mobassaleh
9. Overview of Pulmonary and Sleep Disorders in
Children with Complex Cerebral Palsy
Umakanth Katwa and Sebastian K Welsh
10. Speech and Communication
John M Costello and Elizabeth N Rose
11. Cognitive and Sensory Impairment
Katheryn F Frazier
12.Challenging Behaviors, Sleep and Toileting
Alisa Bahl and Kurt A Freeman
13. Mental health in Children and Adolescents with
Cerebral Palsy
Kerim M Munir and Ikram Rustamov
14. Pain and Irritability
Julie Hauer
15. Seizures and Epilepsy in Children with Cerebral
Palsy
John R Mytinger and Howard P Goodkin
16. Urologic Issues
Stuart Bauer
17. Adolescence and Sexuality
Susan Hayden Gray
18. Transition to Adulthood
Kitty O'Hare and Claudio Melo de Gusmao
19. Evidence Based Care: A Tool Chest for Helping
Families Navigate Treatment Options
Lisa Samson-Fang
20. Difficult Topics and Decision Making
Jim Plews-Ogan and Richard I Grossberg
21. Through the Eyes of Parents
Michele Shusterman, Carol Shrader and
Jennifer Lyman
22. Growing up, Growing Well with Cerebral Palsy
Andrew J Smith, Chelsea Strawser, Benjamin
Schrader, Jaylan Norfleet and Garey Noritz
Appendix: Care Tools for Clinical Practice
