This volume focuses on topics at the intersection between neuroethics and neurodevelopment, and brings together the perspectives of experts in both clinical assessment and intervention, and researchers in child psychology, neurosciences, medicine, health policy, law, and social work. The goal is to review emerging issues related to the ethical ramifications of how variation in human neurodevelopment is described, and the effects of these descriptions on those with lived experience, clinical and intervention services, and health and social policy. Related topics are also explored including the effect of the Covid-19 pandemic, the ethics of invasive neurotechnology interventions, biomarkers, machine learning, precision medicine.
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Table of Contents
Introductory Note Katherine Bassil and Judy Illes Preface William Ben Gibbard Section I: Description and Diagnosis 1. The Language of Developmental Disability Vikram K. Jaswal and Susan A. Graham 2. Attribution: a pervasive but epistemically challenging activity in the practice of Developmental Pediatrics Anton R. Miller 3. First do no Harm: Cautionary Reflections on the Assessment and Diagnosis of Neurodevelopmental Disorders William Ben Gibbard, Andrea Ryce and Nancy Lanphear 4. Language Use and Identity Formation in Autistic Persons Adam McCrimmon, Brittany Lorentz, Keelin McKiernan, Jeffrey MacCormack and Heather M. Brown 5.Disrupted life narratives of children in care with neurodevelopmental disabilities: Whose story is it? Christina Darlene Tortorelli, Peter Choate and Dorothy Badry Section II: Clinical Neuroscience and Policy 6. Invasive Neurotechnology for Neurodevelopmental Disorders Youngkyung Jung, George Ibrahim and Patrick Joseph McDonald 7. Ethical Considerations for Biomarkers of Fetal Alcohol Spectrum Disorder and Other Neurodevelopmental Disorders Alexandre A. Lussier and Joanne Weinberg 8. Neuroethics Considerations for Precision Medicine and Machine Learning in Neurodevelopmental Disorders Emma A.M. Stanley, Nils Daniel Forkert and Sarah J. MacEachern 9. The Impact of the COVID-19 Pandemic on People with Neurodevelopmental Disabilities and their Families Brianne Redquest, Stephanie Andreasen, Kailyn Turner and Carly McMorris 10. Children with Neurodisabilities and Public Policy: Universal Design for Function Rather than Diagnosis Stephanie Chipeur and Jennifer Zwicker
