Chronic Lymphocytic Leukemia (CLL) in the United States: Quality of Life & Information-Seeking Behaviors

This 36-page report provides a behind-the-scenes look at quality of life for those living with chronic lymphocytic leukemia (CLL). Using detailed quantitative data, it provides insight into the condition status story - from symptoms to impact on life to information-seeking behaviors - so you can make informed, strategic decisions, identify opportunities, and understand potential challenges.

As one of the most common types of leukemia in adults, it is estimated that over 200,000 people live with CLL in the US.

Chronic Lymphocytic Leukemia (CLL) in America 2023: Quality of Life & Information-Seeking Behaviors offers a glimpse into quality of life for people living with CLL. It includes selected insights for stakeholders seeking a more focused view of life impact and information-seeking behaviors.

This large-scale, patient-reported data leverages vital quantitative insights for understanding how patients seek out information, what content they’re interested in, and the overall impact on life after a CLL diagnosis.

What makes this report unique?

Very simply: the analyst's focus on patients. This syndicated report is one of the few studies that is based on primary research with diagnosed patients, bringing the patient voice to the forefront.

Valuable insights. Informed decisions.

This report lifts the curtain on life with CLL, giving stakeholders an actionable look at the behaviors, attitudes, perceptions, needs, and experiences of people diagnosed with the condition. Data can be used to inform strategic decisions, including product communications, concept development, patient journey overlays, and forecasting inputs.

This report also addresses important questions that stakeholders may not even know to ask while offering valuable insights into must-have patient-reported data points not available anywhere else. Add-on custom data analysis opportunities are also available for an additional cost.

The analyst is a proven leader in understanding the experiences of people living with chronic health conditions. Through their portfolio of 45+ condition-specific online health communities, they reach millions of individuals, offering information, connection, and support to patients and caregivers in the U.S.

This report includes a deep-dive into:

• Impact of CLL on quality of life
  • Time since diagnosis, remission status, impact on quality of life, symptoms experienced, and what patients wish others better understood
• Information-seeking behaviors
  • Information sources used, plus topics of interest

Key questions answered in this report:

• To what extent do people say CLL impacts their overall quality of life?
• What percentage of patients have received 3+ courses of treatment?
• What do patients wish others understood about CLL?
• What are the top online resources people with CLL use to find information?
• What kinds of CLL content and information do patients search for?
• What percentage of patients search for information on treatment options?

Methodology

• The report consists of:
  • A 20-minute online quantitative survey
  • Qualitative patient insights from open-ended responses

Additional details:

• Fielded: January 16, 2023 to April 14, 2023
• Convenience sample of 244 respondents diagnosed with CLL
• Respondents are age 18+, living in the U.S., and are recruited from proprietary online health communities and recruiting partners