Using the experience of patients, users, healthcare professionals and other stakeholders to innovate and rethink healthcare organizations and systems is gaining ground. Deploying these innovative methods and practices, however, requires an understanding and mastery of theoretical principles, as well as experimenting with them in the field.
Experience in Healthcare Innovation alternates between theoretical presentations and case studies/examples in order to present the key notions of innovation in healthcare and the experiences of the people at the heart of healthcare ecosystems. It brings together diverse and complementary perspectives, shedding new light on the issue of healthcare experience through the prism of innovation. It includes a wealth of resources, ideas and results for all of those in healthcare wishing to implement innovative approaches that place the human experience at the heart of healthcare ecosystems.
Table of Contents
Foreword by Vincent Dumez xiii
Foreword by David Darmon xv
Introduction xvii
Luigi FLORA, Corinne GRENIER and Frédéric PONSIGNON
Part 1 Crossed Perspectives on Experiential Knowledge 1
Introduction to Part 1 3
Corinne GRENIER, Luigi FLORA and Frédéric PONSIGNON
Chapter 1 User Knowledge, a Key Ingredient for Health Innovation and the Sustainability of our Health Systems 11
Geneviève CYR and Marie-Pascale POMEY
1.1 Introduction 11
1.2 Innovation 12
1.3 Towards open innovation 13
1.4 Health innovation 15
1.5 Responsible health innovation 15
1.6 Participation of patient-caregivers and citizens in innovation 18
1.7 Open innovation practices to bring patient-caregivers and citizens to contribute to innovations 20
1.8 Conclusion 23
1.9 References 23
Chapter 2 The Experience of Caregivers in Supporting People with Neurodegenerative Diseases 27
Anaïs CHENEAU and Valérie FARGEON
2.1 Introduction 27
2.2 Theoretical framework 29
2.3 Data and method 32
2.4 Results 33
2.5 Conclusion 41
2.6 References 42
Chapter 3 The Experiential Approach and Alzheimer’s Disease: Including the Spiritual Dimension for a More Global Approach 45
Ruth Laure ALAMARGUY and Pauline LENESLEY
3.1 Introduction 45
3.2 Alzheimer’s disease: loss or search for meaning? 46
3.3 Obstacles to taking the spiritual dimension into account in support 54
3.4 Perspectives: ways to approach the overall lived experience 58
3.5 Conclusion 59
3.6 References 60
Chapter 4 Rethinking the Organization of SDCCs in Light of the Experience of Volunteers in a State of Great Social Precariousness 65
Corinne GRENIER
4.1 Introduction 65
4.2 Theoretical framework: social regulation and experiential knowledge 68
4.3 A situation to transform: the Boutique Solidarité de Marseille (BSM) of the Abbé Pierre Foundation 71
4.4 The intervention-research (IR) approach 75
4.5 The transformation of the BSM: the establishment of the Mutual Agreement Contract (MAC) as a regulation tool 76
4.6 Analysis of the transformation: more balanced regulations 79
4.7 Conclusion 83
4.8 Appendix 84
4.9 References 86
Chapter 5 Professional, Team and Digital Identity: The Impact on Patient Experience 89
Stephanie BEST, Ann DADICH and Sharon WILLIAMS
5.1 Introduction 89
5.2 Conceptual background 91
5.3 Patient experience and health and social care professionals’ identity 93
5.4 Implications 100
5.5 Conclusions 101
5.6 References 102
Chapter 6 Mobilizing the Experience of People with Disabilities: A Necessity in the Transfer of Innovations 107
Éléonore SÉGARD and Philippe CHERVIN
6.1 Introduction 107
6.2 The transfer of innovations to accelerate the transformation of services: a new approach 109
6.3 People’s experience at the heart of the development of ground innovations in the field of disability 112
6.4 Taking into account the experience of people with disabilities in the transfer process 112
6.5 Implementation 116
6.6 Conclusion 117
6.7 References 118
Part 2 Crossed Perspectives on the Impacts on Organizations and Health Systems 121
Introduction to Part 2 123
Corinne GRENIER, Luigi FLORA and Frédéric PONSIGNON
Chapter 7 Reorienting Our Health System towards its Users Thanks to Design Thinking: The Experience of Kaiser Permanente 131
Inès GRAVEY
7.1 Introduction 131
7.2 A lever for rebalancing powers between users and traditional experts 136
7.3 A lever for cultural transformation in the dual bureaucratic and health context 140
7.4 Obstacles and facilitators to integration 142
7.5 Discussion 143
7.6 Appendix: methodology 144
7.7 References 146
Chapter 8 Patient-Centered Care at Public Hospitals: A War of the Worlds? 149
Marie-Eve LAPORTE, Patrick GILBERT and Karim ZINAÏ
8.1 Introduction 149
8.2 Patient-centered care 150
8.3 The theory of economies of worth - a key for understanding tensions 152<
8.4 Study of the orthopedics department of a Parisian hospital 153
8.5 Conclusion 159
8.6 References 159
Chapter 9 A Brief History of Changes in the Medico-Social Sector over Recent Decades Interview with Marielle Ravot 163
Luigi FLORA and Marielle RAVOT
9.1 Introduction 163
9.2 Interview 164
9.3 The experience 165
9.4 Appendix: list of acronyms 180
9.5 References 182
Chapter 10 EPoP: An Approach to Developing Peer Intervention 183
Sabrina SINIGAGLIA
10.1 Introduction 183
10.2 The EPoP approach: a necessary framework for action 189
10.3 The choice of a territorial approach 192
10.4 The stabilization of a new function, peer-intervener and of a new mission, peer intervention representatives 199
10.5 Presentation of a panel of peer-intervener projects supported by EPoP 201
10.6 Conclusion 207
10.7 References 208
Chapter 11 The Potential for Digital Health to Reframe the Role of Compassion in Patient Experience Innovation 211
Lester LEVY, Ann DADICH and Kevin LOWE
11.1 Introduction 211
11.2 Definitions 213
11.3 Compassion in digital health 214
11.4 Deconstructing patient experience 216
11.5 Blending digital health with the human touch for positive patient experiences 219
11.6 Conclusion 220
11.7 References 221
Chapter 12 Help with Prescribing Mobile Health Applications: A Partnership Design 227
Luigi FLORA, David DARMON, Stephen DARMONI, Julien GROSJEAN, Christian SIMON, Parina HASSANALY and Jean-Charles DUFOUR
12.1 Introduction 227
12.2 ApiAppS research, a response adapted to the times? 230
12.3 Design carried out with the participation of citizens 231
12.4 Categorization choices and their development during this research 232
12.5 A dynamic mobilizing cross-perspectives between patients and doctors 233
12.6 Conclusion 235
12.7 References 236
Chapter 13 Beyond the Testimony: Patient Partners and Ongoing Education Program 239
Yves COUTURIER, Marie-Eve POITRAS, Marie-Dominique POIRIER and Anaëlle MORIN
13.1 Introduction 239
13.2 Train-the-trainer program an effective strategy for professional development in primary care 239
13.3 Innovation in the train-the-trainer approach through increased patient participation 241
13.4 Study context 242
13.5 Theoretical framework 243
13.6 Intervention 245
13.7 Methodology 246
13.8 Results 246
13.9 Favorable conditions for full recognition of trainer status for patients in the context of ongoing training 247
13.10 An enrichment proposal for the Montreal model 248
13.11 Conclusion 250
13.12 References 250
Chapter 14 The Care Partnership: Challenges and Perspectives for Healthcare Systems 253
Philippe ANHORN
14.1 Introduction 253
14.2 Context and definitions 254
14.3 Theoretical foundations of the research 259
14.4 Methodology 260
14.5 Main research results 260
14.6 Conclusion 264
14.7 References 268
List of Authors 271
Index 275
